Lyla got fitted for a pair of Orthodics on September 15th. The orthodics are a pink floral pattern and are so adorable. They remind me of the inside plastic liners on snowboard boots. She should get them in about 3 weeks. The orthodics will really help support her ankles to aid in her walking. Right now she stands and cruises but her ankles tend to buckle in from her low muscle tone and she collapses after 10 minutes or so.
Jay has surgery with a plastic surgeon on Monday at 7:30am to remove a Dermoid Cyst above his eyebrow that has been slowly growing since birth. We have to be at the hospital at 6am. It should be a very interesting morning with a parched 1 year old who has not been able to drink his morning milk. The surgery itself should take about 5 min. The incision should be less than half an inch and the scar should blend into his eyebrow. However, I have heard the bruising after surgery looks brutal.
Carly has been in an acute asthma attack for the last two weeks and I have been giving her round the clock breathing treatments.
Such is life with THREE kiddos. I wouldn't trade it for the world though.
Welcome to our family blog!
The purpose of this blog is to be a journal for my children and to help other parents who have been given a diagnosis of down syndrome. It is so upsetting to think that 90% of parents who find out their baby has down syndrome choose to terminate their pregnancy.
Many times as in our case we had no real knowledge or life experiences of what down syndrome was like. It was absolutely frightening to be completely in the dark. However, there were only a couple of days of grieving for the child we had envisioned in our minds. Once we started researching all of the resources available, talking with other parents of children with down syndrome and began bonding with our beautiful twins we were able to see that our twins were not all that different. They were both two beautiful gifts from god.
Many times as in our case we had no real knowledge or life experiences of what down syndrome was like. It was absolutely frightening to be completely in the dark. However, there were only a couple of days of grieving for the child we had envisioned in our minds. Once we started researching all of the resources available, talking with other parents of children with down syndrome and began bonding with our beautiful twins we were able to see that our twins were not all that different. They were both two beautiful gifts from god.
Friday, September 17, 2010
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Hi Jenn :)
ReplyDeleteI hope little Jay's surgery went well this am. :) Sounds like Lyla's new orthodics will help her a lot and be cute in the process. I actually wore braces on both legs as a baby/toddler for about a year and a half, back then, as I'm sure you know they were pretty sterile looking....I don't remember the exact med. term. of my situation, but my ankles were not formed correctly or strong enough to start walking...helped a lot and I'm OK. So sorry to hear about Carly's long bout w/asthma that must've been quite scary and exhausting for everyone....I totally understand what you mean about 'life w/kiddos' (or 'Kid'/ hopefully one more!) - even w/all the up's and down's they are life's true blessing from God.....I can't even imagine life without my son....Take-Care, Annalise :)