Down Syndrome - Sweet Lyla: April 2011

Welcome to our family blog!

The purpose of this blog is to be a journal for my children and to help other parents who have been given a diagnosis of down syndrome. It is so upsetting to think that 90% of parents who find out their baby has down syndrome choose to terminate their pregnancy.

Many times as in our case we had no real knowledge or life experiences of what down syndrome was like. It was absolutely frightening to be completely in the dark. However, there were only a couple of days of grieving for the child we had envisioned in our minds. Once we started researching all of the resources available, talking with other parents of children with down syndrome and began bonding with our beautiful twins we were able to see that our twins were not all that different. They were both two beautiful gifts from god.

Saturday, April 9, 2011

Lyla is a little Walker and a little Talker!

Lyla has amazed me these last few months.

She now says: Mamma, Dadda, Cookie, Thank, Puppy, Ball and Hi!! She is now 20 months old and is constantly moving and babbling. We have kept her on Gingko Biloba this entire time. I believe it has helped her come this far so fast. I just think it gives her energy and motivation. The Speech Therapist was really pleased that she is able to say Cookie. She heard her say it when she was visiting. I guess the C sound is tough.