Welcome to our family blog!

The purpose of this blog is to be a journal for my children and to help other parents who have been given a diagnosis of down syndrome. It is so upsetting to think that 90% of parents who find out their baby has down syndrome choose to terminate their pregnancy.

Many times as in our case we had no real knowledge or life experiences of what down syndrome was like. It was absolutely frightening to be completely in the dark. However, there were only a couple of days of grieving for the child we had envisioned in our minds. Once we started researching all of the resources available, talking with other parents of children with down syndrome and began bonding with our beautiful twins we were able to see that our twins were not all that different. They were both two beautiful gifts from god.

Sunday, November 7, 2010

October - Life Changes

At the end of September, we were supposed to remove a Dermoid Cyst from Jay's eyebrow. Two days before the operation was scheduled the cyst absolutely disappeared so I canceled the surgery. We did a followup visit with the plastic surgeon and he agreed the cyst was completely gone. He could not feel anything when he touched it. He said out of the thousand cases he has seen at Texas Childrens Hospital he has only had 3 completely disappear. Two of those grew back eventually and the other one was permanently gone.

On October 10th I took all three of my babies to visit my mother who lives in Galveston. We had a great visit. We were all sitting outside for most of the day enjoying the very beginning of colder weather. It was a beautiful day and all of the neighborhood birds had began congregating in my mothers backyard. She got out some bread and started throwing it to them. She grabbed my 5 year old Carly and began teaching her how to throw the bread. Each time she did her own version of the Chicken dance. Each time she threw her arms up high and casted the bread above yelling "Whoooooooooo." My daughter followed her every move. I could tell my mother was having a little bit of a hard time breathing. But, for most of the visit she seemed in good spirits. She has been battling small cell lung cancer for the last six years. Towards the end of the day the twins started getting cranky and needed a nap so I left early and headed back to Houston.

On October 13th  my mother died.  After a very bad night of labored breathing and disorientation she was transported to a hospice hospital in heights in Houston. I got the message about her the next day and headed to the hospice hospital around 9am. I stayed with her and held her hand and watched her take her last breath at around 3pm.