Welcome to our family blog!

The purpose of this blog is to be a journal for my children and to help other parents who have been given a diagnosis of down syndrome. It is so upsetting to think that 90% of parents who find out their baby has down syndrome choose to terminate their pregnancy.

Many times as in our case we had no real knowledge or life experiences of what down syndrome was like. It was absolutely frightening to be completely in the dark. However, there were only a couple of days of grieving for the child we had envisioned in our minds. Once we started researching all of the resources available, talking with other parents of children with down syndrome and began bonding with our beautiful twins we were able to see that our twins were not all that different. They were both two beautiful gifts from god.

Tuesday, June 29, 2010

The babies are One Year old!

My twinkies have grown so fast and time has flown by.

Since Lyla was 3 months old we have had an Occupational Therapist and Speech Therapist come to our home to do therapy. She has really progressed fast. Our nanny Samantha who comes to the house everyday is wonderful. She attends all therapy meetings and has spent many hours working Lyla out on the ball or doing floor exercise. As soon as the three of us (her OT, Samantha and I) decide she is going to learn to do something we all hunker down and work with her for a few extra hours and usually within a matter of weeks or a month she acheives the goal. I am so thankful for the free services and therapies that are offered through Early Intervention.

I have just started supplementing Lyla's diet with Ginko Biloba. It has been touted as some what of a miracle drug for the extraordinary effects it has on the memory and for its ability to increase blood flow in the brain. After all, much of what many top Researchers from Universities across the country are realizing is: If we can help prevent the neurons from dying off in the brain, and at the same time increase blood flow to the region of the brain that is most severely affected in Down Syndrome, the hypocampus, then we could possibly allow for more typical brain development. The studies being done at Stanford Univeristy right now are extremely promising and all point to this hypothesis being correct. Just how to treat the brain, is something that still needs to be completely realized.